Getting My Gluten FreeK on at the Mellow Mushroom

Headed to Austin.  Meeting friends at a pizza joint. 

I was feeling pretty anxious about food arrangements so I called ahead to The Mellow Mushroom to verify that there would be nothing there that I could eat.

"Is there any chance y'all have gluten free items?  Yes?!?  You have a menu of six pizzas and I can custom order one if I want?  Can you tell me how you prepare the gluten free pizzas so I can determine if I would be able to eat it?" 

The guy on the other end sound very excited to be able to tell me about the special measures they take to assure the gluten free pizzas are guarded from cross contamination:

• The cook removes their apron, washes hands, puts on new gloves and a new apron.
• The pizza is assembled in the 'cooler' with fresh ingredients.  The other pizzas are made up front
• A screen is placed on the stone so that the crust never touches it.

He sounded so confident and reassuring that I felt confident and reassured...

...but I still asked my server the same questions when I got there.  She told me all the same steps they would take to keep my pizza gluten free and dare I say, she almost looked excited about my special requests!  No blank stare, no huff, only reassurance!  Then she brought me an extensive gluten free menu that reiterated their cross contamination precautions. 

I ordered the Kosmic Karma and mellowed out until the pizza came. 

That's when I freaked out!  It was beautiful: fresh basil, fresh tomatos, fresh pesto and feta cheese!  The crust was gluten-free-good: not gritty, not gooey (I still miss the chew of glutenous crust).  The toppings placed it over the top.  I ate half of it right then and there!!

Best part about that pizza?  I didn't wake up with Lady Gaga claw hands this morning! 

Happy Gluten Free Anniversary To Me!

It's been a year. 

June 1st of 2011 was the day of my endoscopy.  It was the day I decided to give up gluten, before I even got my test results. 

It was the start of a new life.

Within days of eliminating gluten from my diet, I started feeling better.  I could not believe how the seemingly unrelated health issues that bothered me for years started to resolve themselves-- just by changing my diet.  By time I went back to see my gastrointerologist, I didn't care what the endoscopy said. 

"I know you just told me I have a life long auto-immune disease, but thank you." I said to my doctor when he confirmed that I did, indeed, have celiac disease. 

He looked me square in the eyes, stared at me for a minute then said, "You're not crazy." 

I almost started to cry.  I had been told nothing was physically wrong with me for so long, that I was starting to believe it was all in my head.   

I started coming out from under a fog a year ago and I never want to go back. 

I never want to go back to:

• Constant fatigue
• Snoring
• Chronic sinus infections
• Sleep apnea
• Unexplained weight gain
• Aching joints
• Endometriosis
• Irrational food cravings
• Feeling hangry (a bad mix of hungry and angry)
• Dry eyes
• Itchy scalp
• Yearly strep infections
• Mouth ulcers
• Puffy face
• Brain fog
• Backne (you know, acne on your back)
• Hair loss
• Chronic rash on my chest
• Bloated stomach

All of these issues cleared up or started improving as soon as my body cycled out the gluten in my system. 

I'm still recovering from being dismissed and discounted for so long. 

I'm not going to get back the fourteen plus years searching for what was wrong with me. 

But I have this year and the years ahead of me.  I have the knowledge of what 'healthy' feels like. 

It feels pretty darn good! 

I've had immeasurable support from my family and friends these past twelve months.  I have seen continued resistance from those trained in Western medicine; doctors refusing to hear that celiac disease doesn't always follow their flow chart to digestive symptoms. 

This has been a year of learning, healing, trials and triumphs. 

It's been a good year.

Do you remember when you first went gluten free?  Please share your journey with me.

Ball in Play

Here's the playing field: Mexican restaurant on a quiet Sunday, large group of people.  The restaurant had a separate gluten free menu.  I explain to our server that I can not tolerate any amount of gluten.  He was very reassuring and attentive.  I asked about the tortilla chips on the table:

"Are the ingredients gluten free?"  Yes.
"Do you fry them here?"  Yes.
"Do you have a dedicated fryer?"  Yes.
"Does anything else go in the fryer with the chips?"  No.  No, we don't fry anything else with them.
"Are you sure?"  Yes.
"Are you positive nothing else goes in the fryer?"  Yes.

So, I ate the chips with measured glee.  The green salsa was divine--tasted like it could have had pineapple in it.  And then out of left field I see our server heading for me like a baseball player diving for a line drive.

"Stop eating the chips!  Don't eat any more chips!"   He said breathlessly.  Apparently the chip fryer was a shared fryer.

How'd the ball get dropped?  I don't know.  Sometimes they just get past you.  But you still have to pick it up and try not to let it mess with your head. 

"Do you think you got glutened?" asked my friend. 

All I could think was, "I don't know.  I don't want to be.  I'm not going to be.  If I am, I'm going to muscle my way through it like I have for the past fourteen years before I knew I had celiac disease.  And the last thing I'm going to do is talk about it at a dinner table full of guests."  I smiled through and maybe I laughed a little too loud at jokes but I didn't enjoy the rest of my meal.  I just couldn't.

That was five days ago.

I did pretty well.  I almost faked myself out.  I blamed my irrational thoughts and irritablity on my hormones.  I blamed my fatigue on the fact that our a/c had gone out.  I blamed my itchy skin on the pool water.  And I tried really, really hard to ignore the nagging pain that was getting worse under my right rib. 

I dropped the ball.  I let myself be glutened.  So I took a little dirt-nap?   I'm brushing myself off and getting back in the game. 

I'll go back to the play book and see if I can make some different calls next time.